We believe that with the right knowledge about the risks and with the appropriate use of technologies to mitigate them, the value of enabling the sharing of health and medical data is incredibly high for research and discovery and we can’t act fast enough. The technology to protect the data is there, the expertise is there and the security frameworks are there. – Dr. Shiva Amiri, Dateva Co-founder
Privacy & Security is of upmost importance to us
We have provisions in place to protect your privacy and adhere to the highest security standards:
- We are committed to full transparency when it comes to collecting and using data
- We make sure you’ve given us your informed consent before collecting any of your data from 3rd parties, such as hospitals and clinics
- We de-identify and anonymize your data and adhere to PHIPA/HIPAA compliance before we use it in pooled data analysis
- We use encryption software, two factor authentication and compliance with ISO 27000+ provision
Our team has all the expertise to safeguard your data. Our Privacy Advisor, Dr. Ann Cavoukian, is recognized as one of the world’s leading privacy experts and doctors Amiri and Coul, bring a wealth of experience from their efforts with the Brain-CODE project at the Ontario Brain Institute. (The two were awarded “Privacy by Design Ambassadors” by the Privacy Commissioner of Ontario).
What is "de-identified data"?
De-identified data is data that has all personal identifiers removed (using de-identification tools to minimizes the risk of identification). You can re-establish the identifiers if granted permission to do so and this reversibility is a significant difference between de-identified data and anonymized data.
What is "anonymized data"
Anonymized data removes all the possible links and associated references between an individual and the individual's records. There is no way to reverse the process as all links back to the individual(s) are permanently broken.