We regularly donate our money, our blood and our time.
Why Not Donate Our Data?
A Data Donor is a person that understands the value of giving their de-identified health data to be used for research purposes. He or she knows that there are smart ways of sharing data and safeguarding privacy and believes that privacy and security fears shouldn’t stand in a way of advancing medical research.
Find out more about our Data Donor Movement.
You are Already Donating your Data, but may not know it
Have you heard the saying: "What you do in Vegas, stays in Vegas"? Well, anything you share with Facebook stays with Facebook and stays forever - even if you delete the photo or message or delete your entire account. Facebook continues using your data for data mining purposes, selling ads etc.
Twitter? Well Twitter is the same as Facebook! The company doesn’t actually delete any user data as at the moment even when you delete your account. Your posts and photos exist in perpetuity.
Google tracks everything you do and knows more about you that you know about yourself.
Most people don't know how to stop Google from doing this or how to delete some of the data. If you aren't controlling what is tracked, your data stays with Google forever.
Donating your data for health research is different and more meaningful
What we do as individuals can affect the future of all of us, the young and the old.
Collectively, our data could …
- Push healthcare toward prevention
- Aid doctors with early and better diagnoses
- Provide personalized treatment plans for patients
- Fuel medical research & lead to ground-braking discoveries in healthcare